So far 2016 has been a real shitty year for me. I’m having problems with my disability application after my doctor made a minor mistake on the paperwork, and I’m currently completely broke. I keep getting letters from NAV (the Norwegian disability/work/social services agencies) that claim I can just go back to my old job and work full time. I’m in a complaints process at the moment where I pointed out that my employer might not be very happy with someone coming in and collapsing in reception and having to be sent home in a taxi every third or fourth day. I am mostly housebound now, and spend more time in bed than I have before. The process is helping my health very little. I’m half panicking most of the time, and I don’t know what to do if the complaint doesn’t go my way.
The other day I had one of those doctor experiences that leaves you despairing for parts of the medical community. The only really bad experiences I’ve had has been neurologists and rheumathologists, and this one was an example of the last one. He was so focused on rheumatoid arthritis that he didn’t check for anything else, and then he tried to lecture me on how to live with ME. That was enough for me. I was shaky and brainfogged, but I managed to tell him that he should really shut up about things he knew nothing about. I gave up at that point. I might put in a complaint to the hospital at some point, it’s no wonder rare diseases take an average of seven years to get a diagnosis. I might not have a co-morbid rare disease, but if I do it will take additional time to discover.
So all in all it’s been a shitty couple of months. I keep hoping something good will happen soon, I’m having problems staying positive right now.