So today was my first follow up with the neurosurgeon and it’s good news. I wont need an operation, and the risk of a new haemorrhage looks pretty low at the moment. Obviously I need to monitor the bit in my brain stem that is slightly malformed, but over all he thought the risk of something happening again soon to be relatively low.
In addition to that, Oslo looks like a winter wonderland right now. Enough to put a pretty big smile in my face even if its to cold for me to be outside in for any longer than a trip to the grocery store.
2015 has been a very strange year for me. I had a massive flare up of ME/Cfs in march after being fairly well for several years and has been on sick leave ever since. This time as it has before it was triggered by a sequence of infections, but unlike before I haven’t recuperated enough to go back to work even part time. I just count myself lucky that I didn’t end up in the severe category, and in need of home care. I am mostly stuck at home, but I manage the day to day stuff on my own.
Now I’m nothing if not stubborn, so I started preparing for the renovation being home all the time anyway. Now that might not be the smartest thing ever. I was trying to get things in order, but six months later and I think most people would think that I had done nothing.
In October my brain decided to rebel, and gave me what is apparently a second brain haemorrhage. I don’t know when I had the first one, it must have been really small as I can’t recall any extra symptoms. I’m really grateful that things went so well, I have some problems with my eyes and short term memory but other than that I’m doing pretty good. New glasses has fixed the worst of the vision problems.
This led to the renovation project of course. I don’t think it was ideal to start something like that when I was recuperating, but it really needed to be done and I got to spend Christmas in my new home. It’s almost finished. There are some details left but I’m in no hurry now.
2016 will start with massive follow ups to my health issues. I’m having a new MRI scan in the first week of January, and then the neurosurgeons will decide if I need an operation. I had to come off some of my meds that increased the risk of haemorrhaging, and they have obviously masked some problems I have with my joints that needs looking at.
I do have one resolution for 2016: I want to live as well as I can do, and I want everyone else to do the same. You don’t know how long you have to do the things you love and be with the people you love, and that is the most important thing. I’m going to try some new things next year, and maybe I’ll love them as much as the old things I’m no longer able to do.
My body decided to stage a major uprising against me the last few months, and any progress in getting things done came to a screeching halt. Sitting in this mess didn’t exactly help my health.
I have a major problem with asking for help. This is normal i guess, but when you are ill it kind of cumulates in that you don’t want others to have to pick up the slack for you. Cue Monday 27th of October and me sitting down on my computer playing a game. All of a sudden my vision started rolling in two different directions. I called my mom telling her what was happening, and that we would have to cancel plans we had that day. She told me in no uncertain words to call the damn ambulance RIGHT NOW, and as we all know you listen to your mom when she gets that tone of voice if you are five or forty-one.
I think the ambulance was here in five minutes, so was my mother. They rushed me to the hospital. I didn’t really realize until I got there that they thought I had a stroke. Anyway, I spent a week in hospital and the result was a minor brain haemorrhage, and a malformation in my brain stem that is probably something I was born with. I’m doing pretty well – I have a few minor issues, but all in all have been pretty lucky in how it all played out.
Getting back on topic. My mom coming in and having to do things for me made her realize how bad things have gotten. She has appointed herself building foreman, and is roping in the help I need to get the work done. The living room and kitchen is almost empty. There is someone coming on Wednesday to do the demolition needed. I have ordered my new kitchen, and I have a few builders coming to give me estimates next week. When the building work starts, I’m staying with my mother and she will be here with the contractor.
Right now I’m sitting in a bedroom that is nice, clean and tidy and liveable. I’m gonna stay here til I the next time I have to move wich is hopefully never.