Spring is happening

I’m kinda in a not brilliant place yet. It’s partly what I’ve been going through over the last few months with the meds and partly a normal slump in function I seem to have every spring. Why I get worse in spring time I have no idea but it is like clockwork, every year. Could be my allergies, they seem to be extra potent this year.

vår

I’m having some problems stringing longer thoughts and sentences together, and I’m keeping pretty quiet on social media in fear of saying the wrong thing now that my head isn’t all there. I want to take part but I keep worrying I’ll say something that will be taken all wrong. Tone is hard online isn’t it? Especially when you write in a language that isn’t your first and your brain is a tiny little bit scrambled.

I’ve upped the frequency of my infusions a bit, so my pain is sort of under control. At first we increased my gabapentin intake which worked but the major side effect I got was insatiable hunger and well, overeating is a very old “friend” of mine and I kind of had hoped never to see that guy again so that had to stop. Fast. I gained a metric shitton of weight in two months on top of what I already have so my doc has prescribed Topamax for me so we’ll see if it helps a bit. I’ve stopped taking gabapentin and lo and behold the food intake stopped on a dime.

My pain doc is just amazing, I’m not sure I’ve dealt with anyone else taking all of my history so seriously and making sure all of me is doing the best I can. Yes, I know how lucky I am to have him on my team.

 

Sunday update from bed

It’s slow going here for me. The med tapering has gone pretty well, but my pain levels are off the hook right now. I’m seeing my pain doc on tuesday so hopefully I’ll feel a little better after that and can get started on new meds. I’m getting an infusion and probably a block in my neck again so that will help I think.  I really didn’t remember what it was like to not be constantly on opioids and have had a really hard time staying positive the last few weeks.

I’ve been watching a lot of bad action and monster movies to distract myself and I might have seen all of Jason Statham’s back catalogue over the last week or so. He mostly plays the same guys (cop or assassin) over and over again, so I can drift a bit in between fight scenes.

200

Why do the hair and makeup people always put Jason in really bad wigs tho? I mean, there is actual footage of the man with his own hair so finding out where his hairline should go is not impossible.

 

Short update – on meds and sharks and pain

I’ve had some hard weeks after Christmas. That’s mostly normal, but I also have the added burden of tapering my pain meds this month. I’ve been on Tramadol for a long time, and they are no longer effective so it had to be done. I’m being careful about it but it is kinda hard and I’m hurting a lot. The last two days have been particularly bad, and last night I had one of those spikes that reached the 8-9 on the pain scale.

Btw, I use Hyperbole and a Half‘s excellent pain scale. Go read the thing , there are very good descriptions.

http://hyperboleandahalf.blogspot.no/2010/02/boyfriend-doesnt-have-ebola-probably.html

I’m having trouble paying attention, and things are going way too fast for me on social media and the like so if you are wondering why I’m not quite with it this is why. I’m just gonna stay in bed and drink some more cocoa and possibly watch another monster movie. I watched a very bad one called Ice Sharks earlier and that was the best choice I could make today. Sharks, very smart sharks, eating everyone on the ice. Brilliant!